GENE THERAPY EDUCATIONAL MATERIALS
BACKGROUND
In 2023, the FDA approved two gene therapies for patients aged 12 and older with sickle cell disease (SCD). There became an immediate need to create educational resources for patients and families to comprehend the gene therapy processes used in treating sickle cell disease.
CHALLENGE
Currently, there are no educational materials that guide people with sickle cell disease through gene therapy as a potential treatment. On top of that, gene therapy is a difficult concept for children to grasp, which presents the need to develop materials that are age appropriate and informational. The materials should be suitable for different ages and relationships with sickle cell disease.
RESULTS
1. Visualized the gene therapy process in the context of sickle cell disease, showing key differences between the information patients need and information caregivers need.
2. Developed a system approach through pamphlets and guided workbooks to support patients with sickle cell disease and their caregivers in unique ways.
3. Created 10 functioning pamphlets and workbooks to be distributed and initially tested with CCHMC team.
This work is confidential, however I am able to share hard copies in interviews.
Cincinnati Children’s Hospital Medical Center
TIMELINE
15 Weeks
ROLE
UX Researcher, Project Co-Lead
SKILLS
User Research
Data Visualization
Information Design
Content Development
Graphics & Illustration
Storyboard Creation
Prototyping